Apologies to those of you who have been waiting anxiously for an update – it’s been a difficult one to compose.
Leah’s medical condition has continued to deteriorate.
Today has been spent in discussions with the ICU Consultants, our haematologist here, a paediatric palliative care specialist, our consultant in Bristol and other relevant professionals.
At present it looks likely that end of life care for Leah will be put in place tomorrow Thursday.
So very many songs have been meaningful to Leah and I on this journey – here is another one:
Christ alone, Cornerstone
Weak made strong, in the Savior’s love
Through the storm
He is Lord, Lord of All
When darkness seems to hide His face
I rest on His unchanging grace
In every high and stormy gale
My anchor holds within the veil
My Journey: 
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