Maybe the real miracle of healing is the one that takes place in our hearts

Maybe the real miracle of healing is the one that takes place in our hearts

As we rang the bell on arrival at the bone marrow transplant unit that first Monday morning 22nd July 2013 Leah told me she had a headache – I thought it was due to all the stress of travelling. We were shown into cubicle 4 and we waited for the doctor to arrive. Leah said…Continue reading »

My Story

My Story

In 2012 I found myself on three separate occasions listening to a speaker called Catherine Campbell  who described how God had been her source of help and strength throughout the illness and death of two of her three children. I had been a Christian for over thirty years and I earnestly desired God’s will for…Continue reading »

The Importance of Hope

The Importance of Hope

This was it – the big day – Thursday 1st August 2013 – Leah received her bone marrow transplant. At 5.30pm Leah received four bags each containing 77ml of Simon’s good quality bone marrow via a PICC line in her arm. She had been very unwell in the week preceding this, but our morale had got…Continue reading »

GATA2 Deficiency ~ more information

GATA2 Deficiency ~ more information

The diagram below shows all the known possible clinical features of GATA2 deficiency by organ system. Primary disease features are indicated in bold. This page is for anyone who wants to understand more about the effects of GATA2 deficiencies. Click here  to navigate to a Facebook online confidential support group for parents/carers and patients who are…Continue reading »

Farewell To The Bristol Trail

Farewell To The Bristol Trail

Three days spent sheep spotting and I managed to see 19 Shaun’s out of a possible 70. My Sheep Spotter App tells me that I’ve walked 23 Kilometres in the process. Not very impressive? “Could have done better.” I hear you say? I disagree, this trip to Bristol was never intended to be a race, or a…Continue reading »