Do not be afraid; do not be discouraged,
Today’s consultant is from Youghal in Cork so how could he be anything but nice?
Leah’s oxygen requirements remain unchanged & he is going to lighten her sedation so that she can respond to us. This makes me feel better as I miss her terribly when she’s fully sedated.
Her kidney function tests are “trending upwards” which is “doctor speak” for getting slowly worse, but they are not yet at the stage where she needs dialysis.
The problems with her kidneys could be caused by all the anti microbial agents she is on (antibiotics, antivirals, antifungals, ) or it could be all part of the inflammatory process taking place in her body.
The Docs are waiting on today’s update from the microbiologists re the samples that were sent off on Monday.
If none of these have grown anything then they will take her off some of her antimicrobials which will hopefully lighten the load on Leah’s liver and kidneys.
They will also be able to drastically increase her dose of steroids and they will give her the intravenous immunoglobulin that was recommended yesterday.
On Sunday when a church minister was visiting us, Leah starting playing the song “One Thing Remains” on her iPad and when we weren’t taking any notice she gestured to the iPad for us all to listen to the song:
“In death, In life, I’m confident and
covered by the power of Your great love
My debt is paid, there’s nothing that can
separate my heart from Your great love…
Your love never fails, never gives up
Never runs out on me [3x]”