In death, In life, I’m confident

In death, In life, I’m confident

Today’s consultant is from Youghal in Cork so how could he be anything but nice?

Leah’s oxygen requirements remain unchanged & he is going to lighten her sedation so that she can respond to us. This makes me feel better as I miss her terribly when she’s fully sedated.

Her kidney function tests are “trending upwards” which is “doctor speak” for getting slowly worse, but they are not yet at the stage where she needs dialysis.

The problems with her kidneys could be caused by all the anti microbial agents she is on (antibiotics, antivirals, antifungals, ) or it could be all part of the inflammatory process taking place in her body.

The Docs are waiting on today’s update from the microbiologists re the samples that were sent off on Monday.

If none of these have grown anything then they will take her off some of her antimicrobials which will hopefully lighten the load on Leah’s liver and kidneys.

They will also be able to drastically increase her dose of steroids and they will give her the intravenous immunoglobulin that was recommended yesterday.

On Sunday when a church minister was visiting us, Leah starting playing the song “One Thing Remains” on her iPad and when we weren’t taking any notice she gestured to the iPad for us all to listen to the song:

“In death, In life, I’m confident and
covered by the power of Your great love
My debt is paid, there’s nothing that can
separate my heart from Your great love…
Your love never fails, never gives up
Never runs out on me [3x]”

Our God is a Great Big God

Our God is a Great Big God

Leah was more sedated this morning, her oxygen requirements were broadly similar to what they have been, kidney function slightly less good & chest X-Ray no change so today’s nice doctor ( one of my favourite) has decided to go ahead with a bronchoscopy and lavage under general anaesthetic.

They hope that this will enable a more definite diagnosis of Leah’s condition to be made & then they hope to be able to take her off all unnecessary medication and possibly increase the quantities of some medication that might help her.

Results from today’s tests will take 1 or 2 days and they don’t expect to make any major changes to her treatment until towards the end of the week. This procedure is very risky in someone so ill and she may or may not regain consciousness again.

I explained to Leah what was going to happen and then I read to her from Day 5 of Rainbows for Rainy Days by Catherine Campbell. I had some difficulty controlling my emotions & Leah reached out & gave me a big hug.

Just before they put me out of the room so as to set up for the procedure I put on the song “Our God is a great big God” & Leah proceeded to smile & do all the actions while lying there with her eyes closed.

“Our God is a great big God
Our God is a great big God
Our God is a great big God and He holds us in His hands………………………………..
He’s known me and He’s loved me
Since before the world began
How wonderful to be a part of God’s amazing plan.”